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Description

 

Cure EB funds medical research to find a cure for epidermolysis bullosa "EB", a severe genetic skin condition that leads to blistering and skin loss at the slightest friction. Children with the condition are often referred to as 'Butterfly Children' their skin said to be as 'fragile as a butterflies wings'

What we want most is for children and adults to fly free from the pain of EB and make the blisters and wounds stop.

We would love you to join us at the Olympic Park in Stratford, within the shadow of the Olympic stadium to run/walk or wheel to help #CureEB

All entrants will recieve a Butterfly Run 2020 race t-shirt, race number, time chip and finishers medal.

There are events to suit everyone such as an egg and spoon race, 1K, 5k and 10K races so bring your family and friends and have fun!

Are you entering a group or team? Download our group entry form here: CLICK HERE

Simply download, complete and email back to us @ contact@cure-eb.org

We are also looking for volunteers to help on the day. If you are interested please contact kate@cure-eb.org

 

Event Details

Organiser Details

Organiser
CURE EB
Website
CURE EB website
Contact Details
: kate@cure-eb.org
: 07973270705